Name of the project
- LATINO PARENTS' PERCEPTION OF THEIR CHILDREN'S SEVERITY OF ILLNESS IN THE INTENSIVE CARE UNIT
Project abstract/brief description
- Background
Clinicians sometimes question the ability of parents to assess the severity of their childs condition in the intensive care unit (ICU). We surveyed Latino parents to ascertain their assessment of the severity of their childs illness and compared their response with their childs PRISM 3 score and mortality risk.
Methods
We surveyed Latino parents with children admitted to either the pediatric ICU (PICU) or cardiothoracic ICU (CTICU) at a childrens hospital within 48 hrs of their childs admission. The survey included questions that focused on demographics and illness severity perception. The survey was translated from English to Spanish and back translated to English. The Kruskal-Wallis test was used to investigate whether parents perception of the severity of their childrens illness was associated with the PRISM 3 score and mortality risk. Significance was set at p < 0.05.
Results
65 parents were surveyed between 5/07 and 12/07. 38.5% and 61.5% of parents had children in the PICU and CTICU, respectively. Of the 62 surveys with complete data, 3 (4.8%), 21 (33.9%), and 38 (61.3%) parents perceived their childs illness to be mild, moderate, and severe, respectively. The childrens corresponding PRISM 3 scores and mortality risk for the mild, moderate, and severe groups were: 6.0 6.0, 10.6 9.0, and 14.3 8.4 for the PRISM 3 scores and 1.0 1.2%, 8.4 19.8%, and 28.0 12.7% for the mortality risk. Descriptive results showed a correspondence between the subjective and objective measures of illness severity. Results from the Kruskal-Wallis test indicated that PRISM 3 scores and mortality risk were significantly different among the 3 levels of illness severity (p = 0.034 and p = 0.004, respectively), suggesting that Latino parents were able to distinguish the severity of their chidrens illness in the ICU.
Conclusion
Although clinicians sometimes question the ability of parents to comprehend the severity of their childs illness, our study shows that Latino parents appear to accurately assess their childs severity of illness in the ICU.
Name of Principal Investigator
Department/division/center/school in which the project is based
- Department of Anesthesia/Critical Care Medicine at Children's Hospital Los Angeles
Primary institution in which this project is based
- Childrens Hospital Los Angeles (CHLA)
Name and email address for the Project Director / Manager, or person responsible for overseeing the day-to-day activities of this project
If we were to request additional information about this project, pelase provide the name of the person to contact and his/her email address
- Other (NAME / EMAIL)
- David Epstein, MD/depstein@chla.usc.edu
Are there any Co-Investigators on this project?
Please name all Co-Investigators and their institutional affiliation
- Co-Investigator - Institutional affiliation
- Alana Epstein, MSW/Children's Hospital Los Angeles
- Co-Investigator - Institutional affiliation
- Carolyn Wong, PhD/Children's Hospital Los Angeles
- Co-Investigator - Institutional affiliation
- Leopoldo Cabassa, PhD/USC School of Social Work
- Co-Investigator - Institutional affiliation
- Sylvia del Castillo, MD/Children's Hospital Los Angeles
- Co-Investigator - Institutional affiliation
- David Moromisato, MD/Children's Hospital Los Angeles
- Co-Investigator - Institutional affiliation
- Michele Kipke, PhD/Children's Hospital Los Angeles
Which, if any, of the following institutions are you partnering with for this project?
- Childrens Hospital Los Angeles (CHLA)
- University of Southern California - University Park Campus (USC - UP)
For each partner institution listed, please indicate the specific department / division / institute / center with which you are partnering
- Department of Social Work/Children's Hospital Los Angeles
School of Social Work/University of Southern California
Department of Research on Children Youth and Families/Children's Hospital Los Angeles
Are you collaborating with any other academic, clinical or community organizations on this project?
List any academic, clinical and / or community organizations with which you are collaborating. Please include each partner organization's location
Which institutional IRBs have reviewed and approved this project?
- Childrens Hospital Los Angeles (CHLA)
- USC - University Park
Which of the following best characterizes the agency(ies) funding this project? (IF THIS IS A SUBCONTRACT, PLEASE IDENTIFY THE CORE FUNDING SOURCE, e.g., NIH, CDC, etc.)
What month and year does / did funding begin?
What month and year does/did funding end?
Which of the following best describes the project's thematic focus?
- Family/patient-centered care (including health literacy and cultural competence)
In what context do your project activities (e.g. data collection) take place?
- Hospital/in-patient setting
How would you classify this project?
Please indicate which of the following best characterizes the type of research you are conducting?
- Behavioral/social research
- Clinical/patient-oriented research
Which of the following best characterizes your study design?
What type of data collection methods are used?
Which services does your program provide?
- NOT a service project - Research only
How many participants will be/were recruited to participate in your research or service program over the funding/study period?
Which of the following best describe the population this project targets?
Which of the following best describes the age groups this project targets?
Which of the following best describes the racial/ethnic characteristics of the project participants?
Please provide any additional characteristics of your project participants that are specific to the goals of the project, e.g., low-income, un-insured, incarcerated, pregnant/parenting teens, populations with disabilities, specific conditions, etc.
Which of the following best describes the location(s) in which this project takes/took place?
In which LA County Service Planning Area (SPA) do/did your project activities take place?
In which locations outside LA County do your project activities take place?
Does this project have an advisory board?
How often does your advisory board meet?
Please indicate which of the following best describes the membership of this project's advisory board?
Which of the following best describe the type of guidance your advisory group provides for your project?
In what ways, if any, has your project disseminated information about your project, including findings and lessons learned?
Which dissemination activities do you/did you find to be most effective?
How useful do you think a CTSI Research/Service Clearinghouse will be to the following audiences?
How likely are you to use the CTSI web-based clearinghouse?
How would you envision using a resource like the CTSI web-based clearinghouse?
- Connect with other researchers with similar interests
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What would you like to see in terms of the CTSI web-based clearinghouse design and functionality that would maximize the clearinghouse's utility for you and others?
