University of Southern California

Welcome to the LAB-CTSI Community Research Inventory!

The Community Research Inventory (CRI) provides information about community and clinical research focused on community health, health outcomes, health promotion, disease prevention, health disparities, access to quality care and other issues related to the health and well being of LA County's diverse communities. The CRI was created to serve as a resource to promote "cross-talk" between and stimulate new academic-community partnerships and collaborations among researchers, health and social service providers, policy and advocacy groups, educators, community leaders and consumers of care. Launched in 2009, the CRI contains information that was provided by researchers from LAB-CTSI partner institutions/organizations, including the University of Southern California, Childrens Hospital Los Angeles, Kaiser Permanente Southern California, as well as our other LAB-CTSI community and clinical partner organizations. This resource will grow as an increasing number of projects and research activities are added to the inventory. Instructions for use:

If you have questions about the CRI or would like to enter a project not yet represented in the inventory please contact:
Griselda Monroy
OCE Project Assistant
gmonroy@chla.usc.edu
323-361-3695

Here are several ways you can search the Community Research Inventory.

  1. By project title: All projects are listed, by title, in alphabetical order. Once you identify a project of interest, you can access complete information about the project by selecting "View Project".
  2. By keyword(s): In the search box, enter key words of interest, e.g., teen pregnancy, breastfeeding, autism, etc. Any project description that contains keywords you select will be listed for your review. For more information about each project listed, select "View Project".
  3. By specific criteria: Drop down menus have been created to allow you to search by specific disease or illness, by demographic characteristics (age, race/ethnicity, gender), by geography and by research methods used. You may select multiple criteria. Projects will be listed for you review. For more information about each project listed, select "View Project". Note: Presently, many of "specific disease or illness" categories are broad, e.g., chronic illness, developmental disability. If you are interested in a specific illness not on the list, e.g., diabetes, autism, hypertension, please search by keywords.

Search by Keyword

OR

Search by Criteria (multiple criteria allowed)





Clear search and display all surveys

Tags:
Please delimit Tags by commas.

Name of the project
  • Promoting Treatment Adherence in Child and Adolescent Cancer
Project abstract/brief description
  • Scientific evidence suggests that many children and adolescents with acute lymphoblastic leukemia (ALL) or lymphoblastic lymphoma (LBL) do not take their medication in accord with their prescribed treatment regimens. Such nonadherence may have undesirable clinical and scientific consequences such as:(1) mortality and morbidity due to relapse; and (2) problems in the validity of data concerning clinical trials of medication treatment. However, there are little scientific data concerning the efficacy of psychological interventions that have been designed to limit the prevalence and impact of nonadherence to ALL treatment. To address this important scientific need, this study will conduct a randomized clinical trial (RCT) with 170 children and adolescents with ALL or LBL to evaluate a family centered, problem-solving intervention (FPST) to promote adherence to oral medication treatment. This problem solving intervention will be compared with current psychological/psychosocial care. The proposed intervention model is novel in its integration of three key components derived from theory and research on adherence to treatment with pediatric illnesses. These are: 1) training in collaborative problem solving and effective parent-adolescent communication to reduce barriers that interfere with adherence to oral medication treatment; 2) promotion of the child’s/adolescent’s active participation in and motivation for the management of ALL or LBL therapy; 3) emphasis on parental support and child/adolescent adherence to treatment that is consistent with the developmental needs of the child/adolescent. The primary hypothesis of the proposed study is as follows: a family-centered problem solving intervention will result in improved adherence to prescribed oral medication 6MP among children and adolescents with ALL or LBL compared with current Psychosocial Care. We anticipate that the proposed study will identify effective strategies to promote adherence among children and adolescents with ALL or LBL that may potentially lead to improved medical outcomes for these children and adolescents.
Name of Principal Investigator
  • Ernest Katz, PhD
Department/division/center/school in which the project is based
  • HOPE Research program at Chldrens Center for Cancer and Blood Diseases
Primary institution in which this project is based
  • Childrens Hospital Los Angeles (CHLA)
Name and email address for the Project Director / Manager, or person responsible for overseeing the day-to-day activities of this project
  • Name:
  • Email Address:
If we were to request additional information about this project, please provide the name of the person to contact and his/her email address
  • Other (NAME / EMAIL)
  • Brenda Quinonez/ bquinonez@chla.usc.edu
Are there any Co-Investigators on this project?
  • Yes
Please name all Co-Investigators and their institutional affiliation
    Which, if any, of the following institutions are you partnering with for this project?
    • Other (please specify)
    For each partner institution listed, please indicate the specific department / division / institute / center with which you are partnering
    • Cincinnati Children’s Hospital Medical Center- Division of Behavioral Medicine and Clinical Psychology The Children's Hospital of Philadelphia- Joseph Stokes Junior Research Institute Children’s Hospital of Pittsburgh- Western Psychiatric Institute Children’s Hospital of Dallas- Chase Building
    Are you collaborating with any other academic, clinical or community organizations on this project?
    • Yes
    List any academic, clinical and / or community  organizations with which you are collaborating.  Please include each partner organization's location
      Which institutional IRBs have reviewed and approved this project?
      • Childrens Hospital Los Angeles (CHLA)
      Which of the following best characterizes the agency(ies) funding this project? (IF THIS IS A SUBCONTRACT, PLEASE IDENTIFY THE CORE FUNDING SOURCE, e.g., NIH, CDC, etc.)
      • Federal - NIH (please specify BRANCH)
      What year does / did funding begin?
        What year does/did funding end?
          Which of the following best describes the project's thematic focus?
          • Health and psychosocial outcomes
          In what context do your project activities (e.g. data collection) take place?
          • Clinic or other ambulatory healthcare setting
          • Hospital/in-patient setting
          How would you classify this project?
          • Research
          Please indicate which of the following best characterizes the type of research you are conducting?
          • Behavioral/social research
          • Intervention/service evaluation research
          Which of the following best characterizes your study design?
          • Mixed methods
          What type of data collection methods are used?
          • Surveys
          • Collection of specific clinical data
          • Chart/electronic medical record review
          Which services does your program provide?
          • Other (please specify)
          How many participants will be/were recruited to participate in your research or service program over the funding/study period?
          • participants recruited =
          Which of the following best describe the population this project targets?
          • All genders
          Which of the following best describes the age groups this project targets?
          • Infants/children (0-11 years)
          • Adolescents (12-18 years)
          Which of the following best describes the racial/ethnic characteristics of the project participants?
            Please provide any additional characteristics of your project participants that are specific to the goals of the project, e.g., low-income, un-insured, incarcerated, pregnant/parenting teens, populations with disabilities, specific conditions, etc.
            • Children diagnosed with Acute Lymphoblastic Leukemia or Lymphoblastic Lymphoma
            Which of the following best describes the location(s) in which this project takes/took place?
            • LA County
            In which LA County Service Planning Area (SPA) do/did your project activities take place?
            • All LA County
            In which locations outside LA County do your project activities take place?
            • California counties bordering LA County: (please specify)
            Does this project have an advisory board?
            • Yes
            How often does your advisory board meet?
              Please indicate which of the following best describes the membership of this project's advisory board?
                Which of the following best describe the type of guidance your advisory group provides for your project?
                  In what ways, if any, has your project disseminated information about your project, including findings and lessons learned?
                  • NO DISSEMINATION
                  Which dissemination activities do you/did you find to be most effective?
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