University of Southern California

Welcome to the LAB-CTSI Community Research Inventory!

The Community Research Inventory (CRI) provides information about community and clinical research focused on community health, health outcomes, health promotion, disease prevention, health disparities, access to quality care and other issues related to the health and well being of LA County's diverse communities. The CRI was created to serve as a resource to promote "cross-talk" between and stimulate new academic-community partnerships and collaborations among researchers, health and social service providers, policy and advocacy groups, educators, community leaders and consumers of care. Launched in 2009, the CRI contains information that was provided by researchers from LAB-CTSI partner institutions/organizations, including the University of Southern California, Childrens Hospital Los Angeles, Kaiser Permanente Southern California, as well as our other LAB-CTSI community and clinical partner organizations. This resource will grow as an increasing number of projects and research activities are added to the inventory. Instructions for use:

If you have questions about the CRI or would like to enter a project not yet represented in the inventory please contact:
Griselda Monroy
OCE Project Assistant
gmonroy@chla.usc.edu
323-361-3695

Here are several ways you can search the Community Research Inventory.

  1. By project title: All projects are listed, by title, in alphabetical order. Once you identify a project of interest, you can access complete information about the project by selecting "View Project".
  2. By keyword(s): In the search box, enter key words of interest, e.g., teen pregnancy, breastfeeding, autism, etc. Any project description that contains keywords you select will be listed for your review. For more information about each project listed, select "View Project".
  3. By specific criteria: Drop down menus have been created to allow you to search by specific disease or illness, by demographic characteristics (age, race/ethnicity, gender), by geography and by research methods used. You may select multiple criteria. Projects will be listed for you review. For more information about each project listed, select "View Project". Note: Presently, many of "specific disease or illness" categories are broad, e.g., chronic illness, developmental disability. If you are interested in a specific illness not on the list, e.g., diabetes, autism, hypertension, please search by keywords.

Search by Keyword

OR

Search by Criteria (multiple criteria allowed)





Clear search and display all surveys

Tags:
Please delimit Tags by commas.

Name of the project
  • LIFE Survivorship Research Database
Project abstract/brief description
  • This is a database containing predominantly clinical and laboratory data acquired during the routine surveillance visits for long-term survivors of childhood cancer. Data elements include quantitative cancer treatment exposures, results of diagnostic testing, and current health status including a listing of late effects identified and their severity grading (CTCAE v 3.0). Informed consent has been obtained for all participants in the research database. Approximately 250 new survivorship evaluations occur annually at this institution, and the vast majority of new survivors are opting to participate in the research database project.
Name of Principal Investigator
  • David R. Freyer, DO, MS
Department/division/center/school in which the project is based
  • LIFE Survivorship and Transition Program in the Childrens Center for Cancer and Blood Diseases at Childrens Hospital Los Angeles.
Primary institution in which this project is based
  • Childrens Hospital Los Angeles (CHLA)
Name and email address for the Project Director / Manager, or person responsible for overseeing the day-to-day activities of this project
  • Name:
  • Email Address:
If we were to request additional information about this project, please provide the name of the person to contact and his/her email address
  • Project Director / Manager listed above
Are there any Co-Investigators on this project?
  • Yes
Please name all Co-Investigators and their institutional affiliation
  • Co-Investigator - Institutional affiliation
  • Smita Bhatia-COH
  • Co-Investigator - Institutional affiliation
  • Saro Armenian-COH
Which, if any, of the following institutions are you partnering with for this project?
  • City of Hope (COH)
For each partner institution listed, please indicate the specific department / division / institute / center with which you are partnering
  • Division of Population Sciences, Cancer Survivorship Program, City of Hope.
Are you collaborating with any other academic, clinical or community organizations on this project?
  • Yes
List any academic, clinical and / or community  organizations with which you are collaborating.  Please include each partner organization's location
    Which institutional IRBs have reviewed and approved this project?
    • Childrens Hospital Los Angeles (CHLA)
    Which of the following best characterizes the agency(ies) funding this project? (IF THIS IS A SUBCONTRACT, PLEASE IDENTIFY THE CORE FUNDING SOURCE, e.g., NIH, CDC, etc.)
      What year does / did funding begin?
        What year does/did funding end?
          Which of the following best describes the project's thematic focus?
          • Health and psychosocial outcomes
          • Cancer - treatment, survival, prevention, screening, outreach and surveillance
          In what context do your project activities (e.g. data collection) take place?
          • Clinic or other ambulatory healthcare setting
          How would you classify this project?
          • Research
          Please indicate which of the following best characterizes the type of research you are conducting?
          • Epidemiological research
          • Behavioral/social research
          • Clinical/patient-oriented research
          Which of the following best characterizes your study design?
          • Mixed methods
          • Prospective/longitudinal (including evaluation follow-up)
          What type of data collection methods are used?
          • Observational data collection
          • Chart/electronic medical record review
          • Content analysis of documents
          Which services does your program provide?
          • Medical services
          • Individual/small group education
          • Community education
          • Support groups
          How many participants will be/were recruited to participate in your research or service program over the funding/study period?
          • participants recruited =
          Which of the following best describe the population this project targets?
          • All genders
          Which of the following best describes the age groups this project targets?
          • Infants/children (0-11 years)
          • Adolescents (12-18 years)
          • Young adults (19-25 years)
          • Adults (26-65 years)
          Which of the following best describes the racial/ethnic characteristics of the project participants?
          • White/Caucasian
          • Black/African American
          • Latino/Hispanic
          • Asian (please specify)
          Please provide any additional characteristics of your project participants that are specific to the goals of the project, e.g., low-income, un-insured, incarcerated, pregnant/parenting teens, populations with disabilities, specific conditions, etc.
          • All are cancer survivors. We also have access to their siblings.
          Which of the following best describes the location(s) in which this project takes/took place?
          • LA County
          In which LA County Service Planning Area (SPA) do/did your project activities take place?
          • All LA County
          • SPA 1 (Antelope Valley)
          • SPA 2 (San Fernando Valley)
          • SPA 3 (San Gabriel Valley)
          • SPA 4 (Metro)
          • SPA 5 (West)
          • SPA 6 (South)
          • SPA 7 (East)
          • SPA 8 (South Bay/Long Beach)
          In which locations outside LA County do your project activities take place?
          • NOT outside LA County
          Does this project have an advisory board?
          • Yes
          How often does your advisory board meet?
            Please indicate which of the following best describes the membership of this project's advisory board?
              Which of the following best describe the type of guidance your advisory group provides for your project?
                In what ways, if any, has your project disseminated information about your project, including findings and lessons learned?
                • NO DISSEMINATION
                • Other (please specify)
                Which dissemination activities do you/did you find to be most effective?
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