University of Southern California

Welcome to the LAB-CTSI Community Research Inventory!

The Community Research Inventory (CRI) provides information about community and clinical research focused on community health, health outcomes, health promotion, disease prevention, health disparities, access to quality care and other issues related to the health and well being of LA County's diverse communities. The CRI was created to serve as a resource to promote "cross-talk" between and stimulate new academic-community partnerships and collaborations among researchers, health and social service providers, policy and advocacy groups, educators, community leaders and consumers of care. Launched in 2009, the CRI contains information that was provided by researchers from LAB-CTSI partner institutions/organizations, including the University of Southern California, Childrens Hospital Los Angeles, Kaiser Permanente Southern California, as well as our other LAB-CTSI community and clinical partner organizations. This resource will grow as an increasing number of projects and research activities are added to the inventory. Instructions for use:

If you have questions about the CRI or would like to enter a project not yet represented in the inventory please contact:
Griselda Monroy
OCE Project Assistant
gmonroy@chla.usc.edu
323-361-3695

Here are several ways you can search the Community Research Inventory.

  1. By project title: All projects are listed, by title, in alphabetical order. Once you identify a project of interest, you can access complete information about the project by selecting "View Project".
  2. By keyword(s): In the search box, enter key words of interest, e.g., teen pregnancy, breastfeeding, autism, etc. Any project description that contains keywords you select will be listed for your review. For more information about each project listed, select "View Project".
  3. By specific criteria: Drop down menus have been created to allow you to search by specific disease or illness, by demographic characteristics (age, race/ethnicity, gender), by geography and by research methods used. You may select multiple criteria. Projects will be listed for you review. For more information about each project listed, select "View Project". Note: Presently, many of "specific disease or illness" categories are broad, e.g., chronic illness, developmental disability. If you are interested in a specific illness not on the list, e.g., diabetes, autism, hypertension, please search by keywords.

Search by Keyword

OR

Search by Criteria (multiple criteria allowed)





Clear search and display all surveys

Tags:
Please delimit Tags by commas.

Name of the project
  • Improving Cancer Related Follow-Up Care among Hispanic and non-Hispanic Young Cancer Survivors
Project abstract/brief description
  • Today, 80% of all children diagnosed with cancer will be cured of their disease, however many will suffer from late and long term effects of their disease and therapy. As a result of these significant delayed health risks, it is recommended that young adult cancer survivors (YCS) receive life long monitoring to facilitate early detection and prevention of treatment-related late effects. The primary goal of the overall study is to establish a multi-ethnic cohort of recently treated YCS to provide vital information on risk factors for poor follow-up care and to support additional research proposals on methods to improve health care utilization, health behaviors and ultimately, long term survival. This study involves an interdisciplinary collaboration between investigators with clinical, behavioral and epidemiological expertise at Childrens Hospital Los Angeles (CHLA), the Institute for Health Promotion & Disease Prevention Research (IPR), and the Cancer Surveillance Program (CSP). In the first phase of this study, we will conduct two focus groups, one with 15 YCS and the other with 15 parents of YCS to determine the best methods to approach this age group and to identify the most critical barriers to seeking follow-up care. This information will be used to guide the second phase of the study which will include a survey sent to an estimated 625 YCS who were diagnosed and treated between 2000-2007 and to 1 parent of YCS who have been sent the survey (625 parents). Finally the third phase of the study will involve an intervention designed to increase participation in follow-up medical care. 40 survey respondents will be selected based on their survey responses indicating lower participation in follow-up care.
Name of Principal Investigator
  • Kathleen Meeske
Department/division/center/school in which the project is based
  • Hematology Oncology
Primary institution in which this project is based
  • Childrens Hospital Los Angeles (CHLA)
  • University of Southern California - Keck School of Medicine (USC - HSC)
Name and email address for the Project Director / Manager, or person responsible for overseeing the day-to-day activities of this project
  • Name:
  • Email Address:
If we were to request additional information about this project, pelase provide the name of the person to contact and his/her email address
  • Project Director / Manager listed above
Are there any Co-Investigators on this project?
  • Yes
Please name all Co-Investigators and their institutional affiliation
  • Co-Investigator - Institutional affiliation
  • Ann Hamilton, USC
  • Co-Investigator - Institutional affiliation
  • Joel Milam, USC
Which, if any, of the following institutions are you partnering with for this project?
  • Childrens Hospital Los Angeles (CHLA)
  • University of Southern California - Keck School of Medicine (USC - HSC)
  • Other (please specify)
For each partner institution listed, please indicate the specific department / division / institute / center with which you are partnering
  • Joel Milam, IPR at USC Ann Hamilton, Preventive Medicine
Are you collaborating with any other academic, clinical or community organizations on this project?
  • Yes
List any academic, clinical and / or community  organizations with which you are collaborating.  Please include each partner organization's location
    Which institutional IRBs have reviewed and approved this project?
    • Childrens Hospital Los Angeles (CHLA)
    • USC - Health Sciences
    • Other (please specify)
    Which of the following best characterizes the agency(ies) funding this project? (IF THIS IS A SUBCONTRACT, PLEASE IDENTIFY THE CORE FUNDING SOURCE, e.g., NIH, CDC, etc.)
      What month and year does / did funding begin?
      • Month: July
      • Year: 2009
      What month and year does/did funding end?
      • Month: July
      • Year: 2011
      Which of the following best describes the project's thematic focus?
      • Access to care
      • Health promotion/prevention
      • Cancer - treatment, survival, prevention, screening, outreach and surveillance
      In what context do your project activities (e.g. data collection) take place?
      • Clinic or other ambulatory healthcare setting
      How would you classify this project?
      • Research
      Please indicate which of the following best characterizes the type of research you are conducting?
      • Behavioral/social research
      • Clinical/patient-oriented research
      • Health services research
      Which of the following best characterizes your study design?
      • Mixed methods
      • Cross-sectional
      What type of data collection methods are used?
      • Surveys
      • Focus groups
      • Chart/electronic medical record review
      Which services does your program provide?
      • NOT a service project - Research only
      How many participants will be/were recruited to participate in your research or service program over the funding/study period?
      • participants recruited =
      Which of the following best describe the population this project targets?
      • All genders
      Which of the following best describes the age groups this project targets?
      • Adolescents (12-18 years)
      • Young adults (19-25 years)
      Which of the following best describes the racial/ethnic characteristics of the project participants?
        Please provide any additional characteristics of your project participants that are specific to the goals of the project, e.g., low-income, un-insured, incarcerated, pregnant/parenting teens, populations with disabilities, specific conditions, etc.
        • Hispanics
        Which of the following best describes the location(s) in which this project takes/took place?
        • LA County
        In which LA County Service Planning Area (SPA) do/did your project activities take place?
        • SPA 4 (Metro)
        • SPA 8 (South Bay/Long Beach)
        In which locations outside LA County do your project activities take place?
        • NOT outside LA County
        Does this project have an advisory board?
        • Yes
        How often does your advisory board meet?
        • Monthly
        Please indicate which of the following best describes the membership of this project's advisory board?
        • Community advocates/leaders
        • Community healthcare providers
        • Members of the research/academic community
        Which of the following best describe the type of guidance your advisory group provides for your project?
        • Development of research/service materials, research tools, recruitment plans
        In what ways, if any, has your project disseminated information about your project, including findings and lessons learned?
        • NO DISSEMINATION
        Which dissemination activities do you/did you find to be most effective?
          How useful do you think a CTSI Research/Service Clearinghouse will be to the following audiences? 
          • To me
          How likely are you to use the CTSI web-based clearinghouse?
          • Very likely
          How would you envision using a resource like the CTSI web-based clearinghouse?
            What specific information would you want in the CTSI web-based clearinghouse to maximize its utlility to you, other researchers, and representatives of the community?
              What would you like to see in terms of the CTSI web-based clearinghouse design and functionality that would maximize the clearinghouse's utility for you and others?
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