Name of the project
- CHLA Community Asthma Project (CAP)
Project abstract/brief description
- The overall purpose of this study was to determine the effectiveness of an asthma education program. This program planed to incorporate standard of care therapy and education for asthma to a group of children with asthma. No investigational therapy was involved and all treatment was based on existing NIH consensus guidelines. The Study prospectively collected data to evaluate the clinical efficacy of this program. Improved clinical outcomes were evaluated by:
1) Asthma quality of life questionnaires; (phoned in)
2) Asthma management self-efficacy; belief in treatment efficacy; and, barriers to care questionnaires;
3) Evaluations of general asthma knowledge;
4) Satisfaction of care; and
5) Basic measures of asthma control, such as spirometry testing and routine medical history and physical examination.
Qualitative component: To complement information being collected in the evaluation of the asthma education program, formative data was collected from the families of a sample of patients in the study and patients not currently enrolled in the study. This part of the study seeked to explore different cultural beliefs and experiences patients and/or families may have which may influence their engagement with, understanding of, and application of information and education provided in the asthma education program. Information collected was expected to help asthma education providers to contextualize and understand patient outcomes and evaluation findings. This part of the study did not involve any treatment.
Name of Principal Investigator
Department/division/center/school in which the project is based
- Clinical Immunology and Allergy
Primary institution in which this project is based
- Childrens Hospital Los Angeles (CHLA)
Name and email address for the Project Director / Manager, or person responsible for overseeing the day-to-day activities of this project
If we were to request additional information about this project, pelase provide the name of the person to contact and his/her email address
- Project Director / Manager listed above
Are there any Co-Investigators on this project?
Please name all Co-Investigators and their institutional affiliation
- Co-Investigator - Institutional affiliation
- Catherine Goodhue, PNP. CHLA
Which, if any, of the following institutions are you partnering with for this project?
For each partner institution listed, please indicate the specific department / division / institute / center with which you are partnering
Are you collaborating with any other academic, clinical or community organizations on this project?
List any academic, clinical and / or community organizations with which you are collaborating. Please include each partner organization's location
Which institutional IRBs have reviewed and approved this project?
- Childrens Hospital Los Angeles (CHLA)
Which of the following best characterizes the agency(ies) funding this project? (IF THIS IS A SUBCONTRACT, PLEASE IDENTIFY THE CORE FUNDING SOURCE, e.g., NIH, CDC, etc.)
What month and year does / did funding begin?
What month and year does/did funding end?
- Month: December
- Year: 2004
Which of the following best describes the project's thematic focus?
- Family/patient-centered care (including health literacy and cultural competence)
In what context do your project activities (e.g. data collection) take place?
- Hospital/in-patient setting
How would you classify this project?
Please indicate which of the following best characterizes the type of research you are conducting?
- Community-based participatory research
- Clinical/patient-oriented research
- Ethnographic research/medical anthropology
Which of the following best characterizes your study design?
- Mixed methods
- Prospective/longitudinal (including evaluation follow-up)
What type of data collection methods are used?
- Surveys
- Individual open-ended (qualitative) interviews
- Collection of specific clinical data
Which services does your program provide?
How many participants will be/were recruited to participate in your research or service program over the funding/study period?
Which of the following best describe the population this project targets?
Which of the following best describes the age groups this project targets?
- Infants/children (0-11 years)
- Adolescents (12-18 years)
- Young adults (19-25 years)
Which of the following best describes the racial/ethnic characteristics of the project participants?
- White/Caucasian
- Black/African American
- Latino/Hispanic
Please provide any additional characteristics of your project participants that are specific to the goals of the project, e.g., low-income, un-insured, incarcerated, pregnant/parenting teens, populations with disabilities, specific conditions, etc.
- The CAP program is designed to address primarily children with high-risk asthma. High-risk is being defined as those meeting NIH criteria for moderate-persistent or severe-persistent asthma, and those with any risk factors that place them at risk for severe or potentially fatal asthma attacks.
Which of the following best describes the location(s) in which this project takes/took place?
In which LA County Service Planning Area (SPA) do/did your project activities take place?
In which locations outside LA County do your project activities take place?
Does this project have an advisory board?
How often does your advisory board meet?
Please indicate which of the following best describes the membership of this project's advisory board?
Which of the following best describe the type of guidance your advisory group provides for your project?
In what ways, if any, has your project disseminated information about your project, including findings and lessons learned?
Which dissemination activities do you/did you find to be most effective?
How useful do you think a CTSI Research/Service Clearinghouse will be to the following audiences?
How likely are you to use the CTSI web-based clearinghouse?
How would you envision using a resource like the CTSI web-based clearinghouse?
What specific information would you want in the CTSI web-based clearinghouse to maximize its utlility to you, other researchers, and representatives of the community?
What would you like to see in terms of the CTSI web-based clearinghouse design and functionality that would maximize the clearinghouse's utility for you and others?
